Success came so slowly that by the time they were asking her questions, she had almost forgotten this was her, they were asking about. She had not yet grown accustomed to the wonderful – spectacular – tidings, interspersed with long, blank periods of silence and occasional emails bearing good news. “Your cheque is on the way, has been paid in, your release date is early next year…Welcome to our publicist.”
Because the silences in between were so deep, she began to doubt that her biggest dream had come true, that she had actually done the literary equivalent of winning the lottery. It took occasional reminders and statistics gleaned from dogged, faithful on-line friends and worthy “How To” articles, to reassure her that well now, writing was what she did, by all accounts, and that she had best find ways to carry on doing that. During the long gestation before her book would be born, whenever anyone needing anything did get in touch, asking for this or that, she had been used to doing everything, like, yesterday. Working for people who genuinely loved something she had made was a pleasure, and she waited eagerly for further instructions.
The hardest part was remembering her poverty. She had one good suit that she had bought for her wedding, now with one moth-hole (carefully darned) and there was a brace of shirts that she kept for special occasions and had never worn, hanging about waiting for the day she would have to be smartly turned out, carefree in cufflinks. Cufflinks for women were something new, though she had always envied those who could demonstrate so subtly their unsuitedness to domestic tasks. She had bought herself one pair, just to experiment with the ambition that said she, too, might one day leave aside the wet dishes and the soaking tubs, the water that would not now be allowed to catch her cuffs and creep annoyingly up to her elbows. It seemed that her wishes were coming true.
The excitement that others read into the print, she had expelled uneasily over many years. The writing was not the worst part, so that by the time they were enthusiastic, she had moved on to other things, and was able to smile convincingly, and give great answers. She was ahead of them in that, but when they were off zooming down the highway, she waited patiently.
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January 22, 2014
I have a dream
Fran Macilvey change, choices, choosing, conditions and diseases, fatigue, Health, honesty, hope, pain, pain management, patience, politeness Fran's School of Hard Knocks 2 Comments
I have a dream
A dream I had recently seems set to plague me. I am slumped over on a roundabout, in the middle of five lanes of cars all moving extremely fast, fluidly and confidently along the motorway of their lives. I am crouching down, just barely seated on a concrete traffic island in the middle of this, and there is no-where to go. My face is bashed and bruised, and my spectacles are crooked, broken. To have fallen, that would explain the bruises.
Beside me there are two older men, dressed in torn rags, drinkers, I suspect, from the look of their faces. They would have been loved once, when they were younger, fitter and less broken by the ravages of their street lives. Now, they are hardened street bums, and over us all stands a policeman in a smart blue uniform, eyeing us warily.
The cop thinks I am like them. He thinks I am a waster, a loser. Because I cannot get up and walk, because I would stagger and fall into the traffic with fatal consequences, I cannot move. Meantime, another one of me is in a cool, quiet hotel lobby, explaining to a reporter….
“I just got a life, and now they have taken it away from me. While everyone else seems to be going places, here I am stuck on the roundabout, because now, I cannot leave the house. I had such a small life before I had my car, and now, what little freedom I managed to discover has been taken away, as if I am unworthy to be part of the stream of life that others just accept as their due.”
Instead of asking people if they can walk, those who dole out financial assistance and monitor its value in the lives of disabled users, should be looking at the difference it makes. Without a car, for example, I would be stranded at home, staring out of the windows. It is difficult, expensive and rather dangerous for me to venture outside. Without the freedom to drive a small way each day, venturing outdoors becomes exhausting and ruinously expensive. Most of us who currently have the use of a car will, if it taken away from us as a result of the latest welfare reforms, find ourselves cornered at home, having no wish to get run over, or to bankrupt ourselves or the family.
While the government talks about austerity cuts, they forget that most people who currently benefit from free vehicles depend on them utterly, to participate in life and make living meaningful and active, despite disability. Without a car, my life choices shrivel and I become morose, depressed and exhausted. Austerity may be necessary, but taking away vital tools from those who depend on them, is like cutting off a limb or two. No-one, in this latest round of cost saving, is forcing the able-bodied to surrender their freedom. Yet without a car, there is precious little choice left to the rest of us between having a life and a living death.
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