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April 11, 2014

I Had No Idea

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Reactions to my book, “Trapped: My Life With Cerebral Palsy” have been overwhelmingly supportive and loving, with thoughtful and generous crits and reviews being posted on Amazon UK, Amazon.com (USA), Goodreads, Facebook and other websites. I am very touched and pleased that my story has already reached so many readers.

Interestingly, a great many people whom I would count as good friends, react surprised, saying, I had no idea. They are really astonished that so much can have happened of which they have been unaware, though of course, being introverted, depressed and solitary for so many years, it is unsurprising that, until now, only little fragments of my life and times, my thoughts, have surfaced to reach the light of day.

I counted it an important necessity to maintain peaceful dignity, but often that is a way of staying away from the helping arms that others willingly extend towards us. We do need to show our weaknesses, our frailty, and allow others to understand. I’m sorry that, for so long, I have been unable to share intimacies, or to trust that the reactions of friends and family would be supportive. I regret the missed opportunities to share more fully, because, at the very least, sharing would have helped me to notice that we all have stuff to deal with, we all struggle and suffer together in this melting pot called “Life”. Seeing that more clearly before now, would have given me the courage to make more mistakes, be more outspoken, to take more (small) risks so that I might move more freely and help others more often.

Today is a new day. And these resolutions build up slowly, gently forcing my hand. Thank God for the kindness of friends and strangers, and for the love that you have shown me. Thank you.

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March 26, 2014

Writing

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How proprietorial are we about what we have written? For me, the most fun part of writing is the first bit, when ideas are running away from me, down the page, sometimes so fast that my fingers slip off the keyboard while my thoughts are pushing ahead to catch up. The excitement of chasing down an idea and capturing it to the page is really the best part of the writer’s day. Having these ideas, and the words to work them into something, is what art and craft are all about. That first draft, the energetic outline, may be fleshed out very quickly. But we cannot leave it like that, can we? Having a good first working draft is one thing. But surely, the most difficult part of creativity – and a part of writing which I actually enjoy very much – is the discipline of re-reading, discarding and re-writing, sometimes agonising for hours or days over one sentence or turn of phrase. Every artist has pieces of their creativity littering their lives, the piles of which would very quickly become unmanageable without some sweeps of culling and clearing. I find that it is the process of tidying, of reinvention and re-writing that most taxes a writer’s courage. How often should we re-write, and what should we throw away? Anything that we know in our heart of hearts will not appeal as much to our readers as it does to us, will probably be heading to the recycle bin. Writing is not only about retrieving beautiful passages of prose and poetry from our souls. It also encompasses the benign destruction of our favourite passages, to allow the light to penetrate. But like a rosebush that is pruned hard to the ground and blossoms easily and wildly the following year, if we have faith in what we are writing and some patience to brew the final result carefully, that first taste of a good finished piece is surely worth the wait.

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March 24, 2014

Gratitude

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What a strange week it has been. Emotions all over the place, and feeling like a ship tossed on the high seas. The peaks and troughs of having a real job to go to; the agonies of intimacies and private sorrows spoken calmly into a microphone; the kindness of the engineer with his humour and support, his business-like attitude keeping us both on track. At the same time, very generous and lovely reviews for “Trapped” on Amazon UK and Amazon US are posted, which make me feel very emotional gratitude, for different reasons. For added spice there is also have the occasional disappointment from people I don’t even know, who cut off contact with me, for daring to critique their work.

Sorry, folks, but I have kinda got used to critiquing literary works, as politely as I know how, and am rather surprised, these days, to having my comments taken quite so seriously. Whatever I offer is only my opinion, and I am quite happy for people to disagree with me, without feeling the need to go for the full excision. Can we not agree to disagree and remain friendly? Not always, apparently. In the same batch of emails, comforting and lovely news far outweighs the dubious, so after a few careful deletions, I think we can all get on with our lives. It has been a very strange week.

In the mixter-maxter, I feel a lot of thankfulness, too, lately. I am so pleased and thankful to anyone who posts helpful comments, adds lovely reviews and sends supportive love. It means the world to me. Check out these lovely reviews, and add your own.

http://www.amazon.co.uk/Trapped-My-Life-Cerebral-Palsy/dp/1628737611/ref=sr_1_1?s=books&ie=UTF8&qid=1395592429&sr=1-1&keywords=fran+macilvey

 

Daffodils_in_a_vase

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March 21, 2014

Big Red Writing Hoodie

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My big red writing hoodie is actually a fleece. I had a fleece I used to wear when I started writing Trapped, because I used to get emotional, and cold, and shivery. Perhaps it had something to do with beginning work on the first draft in the depths of January, when the light was improving, but the ground was still icy and hard. I got accustomed to wearing this garment like a security blanket, every time I was writing at my computer.

Over time, I must have written out so much sorrow, grief pouring onto the page like thick treacle: coming to terms with all the rubbish that I have tolerated, the negative emotions, expectations and ideas that have clouded my lens over the years, and have spoiled my life correspondingly. I was probably in mourning, too, for all the time I wasted being unhappy. Unhappy about being unhappy….what a waste of time.

Last week, I zipped up this jacket crossly, thinking to burrow down for safety and feel insulated from my latest bout of existential uncertainty. Perhaps all writers have them, and they are a pain. But, feeling strangely dislocated, I found myself simply getting crosser, more angry over nothing. “Unusual” I was reflecting, “How odd, I don’t understand this…why am I behaving like a total idiot?” It was like being both Dr Jekyll and Mr Hyde.

An answer landed in my lap. My jacket, which had held me securely through a great many traumas, was suffering from ptsd for clothes. Perhaps it had absorbed all that anger, sorrow and incredulity, which I was then dishing out. Either it was full of bad memories and emotions, clogged up with negative feelings; or else the association of that jacket with unhappiness was very strong. Either way, my fleece had to go. I had to throw it out, which I did immediately. I felt much better afterwards!

Arthur Rackham - Little Red Riding Hood
Arthur Rackham – Little Red Riding Hood

In my wardrobe there may be other clothes I should release, because wearing them makes me unhappy. It is not simply that they are old fashioned, tired or frumpy, but also that they may carry vibes that I would rather not hang on to. Which may be the best reason to spring-clean my wardrobe that I have ever come across.

Now the outer waterproof, for which the fleece was the lining, is my only coat. Perhaps I should think of purchasing another: Blue, maybe, with a zip and useful pockets for house keys and hankies. And lots of cheerful memories to store in its fibres.

 

 

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March 19, 2014

I Must Not Be Selfish

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Just when I reach one of my lowest ebbs, there come two pictures of daffodils posted on Facebook by a lovely friend. I gaze at these and determine that what I most need is not courage or resignation, but discipline. And so decided, I don my scarf and coat and go outside for all of ten minutes in search of elusive daffodils nearby. It is windy and cold, a blast of spring air. As I gaze up into the sullen, darkening sky which mirrors my mood so neatly, I realise, This is not about me. I must not be selfish.

In writing my book, “Trapped: My Life With Cerebral Palsy” and now in narrating it for the audio book, I have at last accepted fully that, regardless of how humiliated I may feel, there is more at stake here, than my privacy or my sense of personal dignity. Other people are working hard for me, it is true, and many of them do so for little tangible reward. But the picture is bigger than this. I can read, and write, and I have a wonderful life. I have freedom to move and the space to express my preferences. I know that, most days, I do not do enough with that freedom, but at least I can move away from here. I have always known that, in life, it is having options that matters most.

There are millions of people in the world who suffer in silence, who endure cruelty, exclusion and neglect, and who have no-one to speak for them: millions of children who are misdiagnosed, misunderstood, pigeonholed, forgotten and overlooked: millions of adults who can do nothing about the places they find themselves in. As I write in my book,

“How many others with issues like mine are languishing in the shadows of institutional ignorance because their families listen politely to advice which owes more to prejudice and speculation than to hard facts or compassion? If it wasn’t for my mother’s decision so often to disagree, to go it alone, I would be in a “home,” possibly dead, having led only a teeny little bit of a life. No one would have known anything about me, or uncovered the thoughts lurking behind my eyes. The smallness of my life would have remained a hidden loss, overlooked, as the lives of so many disabled adults are overlooked.”

If my book can strike a blow for freedom of conscience, self-expression, human dignity and compassion, then the small terrors I have to endure are well worth the price. God will give me the strength to do as I must. And, with that faith, together we can all join and create miracles. I do so hope you agree.

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March 18, 2014

Reading with Ariel

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Reading with Ariel

I hope readers of my blog will forgive me: I have not posted anything this week, because I am narrating the audiobook of “Trapped: My Life With Cerebral Palsy”. Doing so is heart-wrenchingly difficult.

The audio producer kindly asked me if I would like to read. The word “like” suggests enjoyment, fulfilment. So when I said ‘yes please’, that was fine, and doubtless they see no reason for me to be unhappy about it. Of course, I would do it, even if they asked me again, I would give the same answer, but that does not mean it has been easy.

Writing about the painful episodes of my life – that would be from the age of five to about forty-two, then – is one thing. There is something reassuring in writing that conveys meaning which, while it may have to be spelt out, nevertheless maintains a dignified silence. Articulating the same passages with sound, brings a whole level of new pain to the experience which can hardly be appreciated by those who do not have to endure it. Actually, I am familiar with being told what to do, and my obedient persona complies easily with requests to repeat difficult passages. These are the worst, of course, because they are the hardest to get right, to do calmly, and so have to be done again. I pray continuously, not to break down and weep. I ask for help from my guardian angels. I clench my fists hard and beg, and swallow and wait and hope for the next storm to pass, because there are timetables to meet. Because there are only so many times I would like to cry about this, again.

Brosen Bielsk - Podlaski Aniol
Brosen Bielsk – Podlaski Aniol

It has something to do with feeling humiliated, and having to expose truths and lies that I have held beneath a dignified silence for so long.

Whatever way I might have chosen to play this, there were always going to be disadvantages and benefits. I learn, the storm passes, and a smile is always waiting to lift me up. Thank God.

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March 14, 2014

Learning to Float

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Learning to Float

I always loved floating, knowing I was totally relaxed and safe on my back in the swimming pool. Later, in the waves of the gentle Indian Ocean, I felt the same boundless freedom and joy, with nothing to hold me back.

When I was older I encountered the Atlantic and the story grew rougher, heavier and more ominous. The sun hid behind dark clouds and was a long time showing itself again. I pushed my way, buffeted by storms and big, fathomless deeps below me, filled with gap-jawed monsters. The depths threatened to swamp my small strokes and to pull me under, salty seawater in my mouth. If I drowned, who would notice out here?

I felt an affinity for other drowning souls, the ones I passed in circles to nowhere. The times we met, we would wave at one another, exchange a joke and carry on swimming.

One evening, just as the sun was setting over the horizon, a small double-oared boat came. I was hauled out of the water into unfamiliar, warm blankets and handed a mug of warm tea. It felt very unusual and I suffered from emotion sickness for a while longer, as my legs, thin and wobbly beneath me, learned the painful art of taking their own weight again, finding strength and standing as tall as I could: I just had to push myself upright and after a few tipsy wobbles, there I was, with the rest of the dry crew.

But I was unused to life on dry land. Like a fish out of water, I missed the wet – the depths of sorrow teeming with slippery, quicksilver life – that felt so real but slithered away out of my grasp. It took a while to accept that rooted trees were valuable allies in the battles on land. To learn to look up and enjoy seeing their branches unfolded above me, especially when I noticed colours again. Yellows, oranges and reds became such a cheerful change from my usual blue. The heart pinks that blossomed in the arms of trees in Spring, brought home the value of love and friendship.

I marched forward with the rest of them and worked on smoothing my stride. It grew longer and more confident, though my body remembered going round in circles, feeling familiar slapping eddies that went no-where. As I pushed at sands, they rose in front of me. I struck at roots, at edges and ledges. I pushed past, always searching. I tripped and fell, though I moved forwards, always on the way to somewhere and something else. I hardly know what I was searching for.

I made out lamplight that burned constant and cleanly over the landscape. It brightly promised hope which I reached for, and answers for when I might stop to listen. Always the answers waited, in the piercing brilliance of the light, which gave me hope and courage to keep searching when evening came and darkness fell. With each declaration of strength, “I am strong. I am powerful. I am peace” my light shone brighter. The ripples these beliefs sent out – first resistance, then acceptance led me forward to a different knowing.

Each statement we make is like the arrow shot over the bows of our “difficulties” and landing in the soil of our fruitful future. It is our soul task, to flex our muscles and state benign beliefs strongly. As we move, we select and refine our choices. That we can do, seeing our choices all around us, after familiar eddies of disbelief come and go.

Regardless of which sea we swim in, we can learn to float again on the currents of our desire. Learning to float again, we do not need all the answers. We only need to decide what we choose, and the rest will come, so long as we can wait peacefully. A peaceful life is a happy life. A contented life is one that accepts. Accepting what we are, what we have and what we desire, we are in a state of allowing, and All comes to us in the best way it can.

 

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March 13, 2014

In The Driving Seat

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In the driving seat

For me, one of the hardest disciplines is waiting patiently: waiting to hear from other people, and having to accept more immobility than I would prefer. I have always wanted to run, skip, dance and move more than I could; and it has indeed been the work of years, to learn patience in the face of silence. Now, I prefer to reframe that unwelcome lesson with the reassurance that every silence is kind, and allows others – who are working hard on my behalf – to procure small miracles quietly. When I remember that “The Universe is constantly conspiring to work things out in our favour”, the most important thing is to decide, clearly, what I choose, and to let go.

Next week, I have to get myself to a recording studio over several days. It is out of town, on a route I am not familiar with. It also leads across one of the biggest and scariest roundabouts – with turnoffs and leads lanes of fast traffic – that I have ever encountered. I haven’t ever flown over it solo – My brave husband or the jolly taxi drivers do that – but I yesterday I did at least manage to get to the approach, before swinging off at a petrol station, just before showdown. I was rather petrified. But pleased with myself for driving so far.

Again, that fear mirrors much of the hesitancy I have about life, the indecision. It could be that, because I didn’t walk until I was five-and-a-half, I am simply unused to taking things in my stride. In the old days, my failure would have brought up feelings of loathing and despair, but now, I understand sadly, that forced immobility could excuse a lot, and there is no point being upset because I fail with what I set out to do. Maybe I will never be the best driver in the world, but I will always do my best. That thought will have to console me meantime. I will take cabs, which will cost far more than I can afford. Another hidden cost of disability? Not quite, but close.

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March 10, 2014

Fear

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Optimism, faith and relaxing with Life were yesterday’s theories. God bless Sundays.

Today, I am wondering about the wisdom of having shipped out copies of my first book, “Trapped: My Life With Cerebral Palsy” to my long-time friends. I worry that they will read my story, and, filled with a new and worrisome incomprehension, they will flee from me, and possibly never speak to me again.

The older, wiser me steps in and attempts to arbitrate this fear, “Ah, but is fear of the reactions of others – even our friends – ever a reason to not do something which we feel impelled towards?”  And I know, of course not, no. If we let our fears of disapproval dictate our actions all the time, we would have very small lives. Ruled by fear, what do we become? Mere shadows. Intellectually, logically and spiritually, I know this. I know too, that my friends like and love me for who I am. In most cases, a mere book will probably not come between us. But emotionally, I am less robust, frightened of my steps into the unknown, this uncharted territory. My resolution wavers wildly, and I am prone to unexpectedly fierce bouts of weeping. How will my kith and kin react to this latest bout of independent action? When my neighbours see me again, will their minds rove constantly to the sorrowful and shameful revelations of my story? Will their eyes flicker in disbelief or widen in disgust? I doubt it, yet part of me is sorrowful in fear.

The answer is in what I have written earlier, that the Universe is constantly conspiring to work things out in our favour. So then, everything I do is part of that process, in which there is nothing much to think about, far less actually worry about and a great deal to enjoy. Okay, that sounds gentle and reassuring, so it works  meantime. Now, who else would like a copy of my book?

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March 5, 2014

Brian 2

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Brian 2

“Oy! Watch where you’re going, won’t ya?!” Suddenly, there was this woman yelling at me to keep out of her way, rolling forward on the balls of her feet and standing over me, the bulk of her body blocking out the draining light of a late afternoon in August. She had a fag in her fingers and the smell was drifting unpleasantly up my nostrils, but you know, the burnt heat of it sort of woke me up. Dozing on my patch where I always sit, she had just walked up and almost past me, about to kick me and then thinking better of it. “Gerra life, ya lazy bag of shite…” she mumbled, suddenly aware of her mistake and that I was alert and not actually a dope-head. I pulled on Gazza’s chain and just waited.  Maybe she hadn’t seen him tucked under the blanket at my side, or maybe she felt caught out, but she mumbled, hocked and spat just next to me, and then moved on, taking her shopping bag, her dripping fag and her bad attitude away with her.

I am getting used to it, but after more than twelve years on the streets, and being settled here where most people know me and respect my patch – I leave theirs well alone, too – angry outbursts from stupid people are getting a bit predictable, you know? Like, I have a brain in my head, I have good eyesight, and I know all the best places to get a warm bed or a meal for under a fiver. I can spot trouble at forty paces so I’m quite savvy enough. It’s a wonder to me, that people see me sitting peacefully here, just minding my own business, but they think I’m out of it, a fuck-head, witless, away with the fairies. I’m not, as it happens, and what happened to me could happen to any of youse, too.

I was the youngest of nine children. Me mum was always after me to tidy my side of the room, to brush my hair or my teeth, wash my face, make myself neat. Though her pestering annoyed me, something must have stayed, because I find myself becoming more house-proud as the years pass, which is daft. My house is currently a static caravan looking out onto a field in Midlothian. I’m renting it, courtesy of a friend of my da’s who has two of them, and lets me have that one for me and my dog.  It looks out onto a big field at the back. And I have my pitch here, just next to the bank and down from the High Street. It is a good place to sit, though I would not call it comfortable being on my arse for hours at a time. I’m thin under my padded jacket, I know, and I don’t much like it when well fed people point that out to me, either. It’s not as if I don’t know about food, after all.

People sometimes don’t see me, like when it’s crowded, like just at this time of year when the streets are mobbed and nobody’s looking where they’re goin’. They really don’t notice me down here and I get kicked in the shins. My dog, he gets stepped on, which isnae fair on him. People throw things too, bottles, cartons of half-finished food, they just throw them down and expect the Council to collect them up and take them away. Or they leave half-finished bottles of alcohol on the sill next to my head and the smell sends me back a few years.

I was a drinker, but it wasnae that did for me. Not really. Yes, I was mixing my drinks, drinking at work, but it was the coke that finally got tae me. One mistake. Really, that’s all it was, because with some drugs, ye just cannae dae it the once and expect tae leave it. It comes efter ye like a cloud of promises that make your mouth dry and your body sweat and your eyes see things that areney there. That’s the worst, the not feeling right and not knowing how long it will tak tae feel solid again.

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