acceptance

February 11, 2015

Love

, , , , Flash Fiction & Short Stories 2 Comments

Love

 

‘Careful now, we don’t want to drop her, do we?’

Her dark anxiety faded as a dazed, fretful bundle nudged and stretched. A fist found and grasped Helen’s finger like a lifeline, so tight, Helen knew she could never let go, and her heart contracted lovingly. Creased lines in the tiny face would gradually relax as the days slowly widened. Eyes open, Cassie gazed longingly into her mother’s eyes.

‘She looks like her Dad, see?’ and Helen began to cry.

‘Yes, she does…’

The pain of loss stretched her chest and caught her breath. Ordinarily, she took condolences politely, with a hint of a tear and a rueful smile, ‘Yes, Jonathan was a special man….very special…’. At night, the covers over that cavern slipping, she fell and could not breathe. While their babe slept, heaving sobs gripped her throat. She welcomed them, let them wash her grief, clear the stains of loss, the waste of his stinking sickness, and the happy times before he died and left her alone.

It got easier. Cassie smiled so brightly, and her golden hair, at first so sparse and fine, grew over her crown into thick, shiny tresses.

At nine months, Cassie played and cooed on her mat, flicking the crinkly cow’s tail and pressing the buzzy bee’s wings. Cassie lifted her chin to Mum sprinkling glitter, blissful blue eyes catching sparkles.

Doorbell. Letter. Who writes letters these days?

Darling Helen

Thank you for being so brave.

With all my love, always,

Your Jonathan

 

Johannes Vermeer - 'Girl Reading a Letter at an Open Window'
Johannes Vermeer – ‘Girl Reading a Letter at an Open Window’

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December 18, 2014

Learning Curves

, , , , 'Trapped: My Life with Cerebral Palsy' 7 Comments

Learning Curves

The advent of my fiftieth birthday gives me a valuable opportunity to reflect on all the lessons I have learned. Every year I reflect, and every year I see many new changes and challenges coming my way. Ever so gradually, I notice that, since it serves me to work this way, I can turn every challenge into an opportunity to learn something important. Learning curves go both ways, of course, and maybe the trick is to learn to surf them.

When something difficult happens, we can, of course, get upset and go back to bed. We can see what happens as an inevitable part of life’s rich tapestry. We can smile and what catches us and try to let it go.

I do my best to remember that Life

  1. Constantly hopes for the best for me; and
  2. Has something to teach me.

Therefore, logic suggests that the hardest lessons are the most important, and offer the biggest opportunities for growth, for change and for deciding to play the game of Life differently. That way of seeing things gives me hope.

I wish you all a Merry Christmas and a blessed, happy New Year. 2014 has been amazing, and I wait with deep excitement for the delights of 2015. Thanks for all your comments, encouragement, reviews, support and friendship.

Flowers, by Fran Macilvey
Flowers, by Fran Macilvey

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December 8, 2014

Domestic desperation

, , , , , , , , Flash Fiction & Short Stories 3 Comments

 

A piece of flash fiction, for a change……

Domestic desperation

I recall a time when women wore dresses, plus floral aprons, if they knew what was good for them. Frilly, prettily tied at the waist. Not the practical, full-size kitchen chef ones, with depth for drying hands and wide pockets collecting scum. My workaday wrap probably makes me unfanciable. My hands are older than the ideal, too: liver spotted and scarred with livid lines from the metal grilles and shelves of our oven.

In the blinding summer light of June, I am flamed. While my daughter prepares raspberries and cherries and doles them out carefully into three separate bowls, the sun beats through the wide kitchen window, and I desire coolness. I love heat which warms my bones, but this inferno, during which I must work and move and calculate, is ungovernable.

“Had a good day, darling?” I ask, absently, as my husband’s keys turn in the lock and he approaches cautiously, twisting off his tie. I am not really listening, as I must take the flapjack out of the low oven, turn down the heat under the soup – I thought it would be cooling, I was wrong, okay?- and blitz it, while stirring custard to go with the flapjack and raspberries. I thought custard would be comforting, I was wrong, okay? Over half-way finished, there is no point remembering I have ice-cream in the freezer.

I make wrong decisions when I am alone. My daughter comforts me when I weep with frustration and longing. For a bit of a change, for a new place to rest, where the cushions are comfortable and someone else has just done the cleaning. Just for a change, while I get my breath back.

Hubby hovers, unsure whether to stay in the volcanically hot kitchen, and risk getting in the way to plant a warm, affectionate kiss on the face of his favourite woman – our daughter is a girl – or whether to tactfully retreat so that I can get on with finishing cooking, free of distraction.

Either way, when he leaves, I feel lost. I am alone, I am too hot, my husband is not helping me, and all our longings lie quietly where they have been birthed and left to finger their way upwards, wordless.

At last, my daughter sidles through, arriving in answer to my repeated callings that supper is ready. She is a little hang-back, perhaps frightened how I might be at this tipping point in the day, but she has the courage – such courage! – to wrap her arms around my waist. I cannot pull her off, because my yearnings mirror hers. I desire to be cool and fragrant, wrapped in a dainty apron that reeks femininity and layered, scented secrets. I desire to smile widely and hold. So I set down the pan, step sideways so I can lean on against the kitchen cupboards, and hug tightly. In her warmth, her red cheeks on mine and her thick, fair hair shadowing us both, I recall my coolness.

 

Femmes_séchant_le_linge_(Ev__Carpentier)

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November 28, 2014

How I Keep Going

, , , , , , , , , 'Trapped: My Life with Cerebral Palsy' 2 Comments

How I Keep Going.

Boxes of chocolate are great, though they cause mood swings.

 

Chocolate box

Better to canter downstairs and outside to gaze at the high sky in summer, or rustle up a dollop of good food to fire my synapses.

Hickory Run, State Park, Sky View
Hickory Run, State Park, Sky View

 

Reading is a must, my desire fed and watered at well-written books laced with self-deprecating humour.

Kit, a first year student in Laos, reading aloud Big_Brother_Mouse

 

Friends, who insist on dragging me out for lunch promptly on Wednesdays at noon, force me notice new views which feed the written word.

Hayat

 

My daughter, with her too-big bike, who gazes smilingly into our dark hallway through the glass, offers a joyful lift with her smile, despite the interruption.

Fisherman and child on homemade bike, Nara

 

Enjoying holidays, I discover, refreshes my spirit in ways that a computer screen simply cannot.

 

Field_of_sunflowers

Out in the wilds of creative impulse, towering above, proud and unashamed, is the desire to weave bliss in words.  I choose, I focus on fully; and like the space between worlds where magic is revealed, all else falls away.  My yearning to write colour into breathing, fuels the determination to continue: My choice, my power, my wings, my life.

Cornis Florida

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November 19, 2014

Why Did I Write Trapped (Part 2)

, , , , , , , , 'Trapped: My Life with Cerebral Palsy', Fran Macilvey, Fran's School of Hard Knocks, Memoir, Path To Publication 4 Comments

Lotus_india_cropped

Recently I was interviewed about Trapped at my husband’s church, and the experience was over so soon, I felt I hardly had time to draw breath. I had prepared some answers to questions, which were helpful to hold on to. When we went off script, it felt quite natural, easy and relaxed.

The minister was gentle. She asked thoughtful questions, asked, why did I write Trapped; and was so perceptive and kind that, almost, despite the laughter, it would have been easy to weep, though not for the obvious reasons.

Being disabled, one runs the constant risk of being misunderstood. I felt I was, and that process turned me initially guarded, then defensive, then prickly, then isolated. In retrospect, and having had the courage to spell everything out (as much as for myself as for the reader), I see that retreat is not inevitable, of course. I can’t help feeling that much misunderstanding and sorrow might have been avoided, or shed more easily and naturally, if there had been more people around who were unafraid to grasp me in their arms, speak to me as I needed to be spoken to, firmly and kindly, in order to break through the self-imposed isolation that has been one consequence of being misread.

I grieve for the obvious reason that life was awful, and for the less obvious reason that I have wasted so many years being unhappy. There is the other, more insidious pain of knowing that my perceptions – like those of others! – were often greatly mistaken, and that if I had been less fearful and stood my ground, no-one would have minded terribly.

Sure, the world is full of insensitive oafs, and cruel people who are casually unjust, and it is our focus on such people that turns us inward. But the world is also brimming with delightfully kind, forgiving and thoughtful people.

This also makes me grieve now, because I missed so many opportunities for joy, and for love, and for fun and humour and sheer delight. Meeting wonderful people, knowing they can see past my social awkwardness, my stumblingly stupid statements, to the smile that hopes it will be accepted, is so liberating. That makes me grieve now. Life is full of inexplicable contradictions, isn’t it?

Without having gone out of my way to excavate my experiences by writing them, none of this would be clear. Muddy confusion would all be sitting still, at the bottom of a dark glass, festering.

Lavender_rose

 

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November 17, 2014

Why Did I Write Trapped

, , , , , , , , , 'Trapped: My Life with Cerebral Palsy', Fran Macilvey, Memoir, Path To Publication 6 Comments

Why did I write Trapped

Occasionally, puzzled people have asked, abruptly, why did I write Trapped.  Why did I pursue my dream of publication?  Do I not object to the invasion of my privacy and the laying bare of my intimate life?

Three Roses

Yes, well.  I always felt I could write, comfortably enough to attract an enthusiastic A+ in essay writing from a stiff and challenging teacher with a soft centre: ‘excellent story, Fran, but I can’t think WHAT has happened to your handwriting!’  I have always written, and eventually it became obvious (probably because I could not fritter away my time being a barmaid or a waitress) that I should stop chasing after what I would never be able to do, and focus on what I could do.  It seemed silly to pretend that writing was frivolous and unimportant, especially as I’ve always had a sneaking suspicion that I enjoy it.

I got to forty, and thought, hey, I’ve arrived, and getting old seems to be the world’s best kept secret.  I became even more sedate and withdrawn, dignified, as a forty-year-old thinks she has to be.  But as I cranked up some steam into the following decade, I knew I was hiding, and that my personal silence was much less important than finally – finally – letting my family discover who I was, and  that I really, really love them.  My parents grow frailer, my siblings have their own issues and challenges, and my husband and daughter could do with a few more clues about me.  I thought it might be helpful if I could maybe throw some love and understanding their way: come to terms, discard those grudges that go back years, empty out the pot of resentment and clear away the backlog of mistaken assumptions.  Writing helps with all these aspects of growing up.  The process of learning to write and having the courage to publish is in itself so rewarding, that even if I knew then, what I know now (how long it would take, how much pain there would be) I would still accept the challenge.  A bit of discomfort is never a reason to shy away from home truths.

Rose heart

In case you missed it, here is an interview with Claire Wingfield which was first published on 29th September on her blog.  Please visit her blog, comment and share.  And thanks for reading this.

 

 

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November 11, 2014

Riding Again

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Haflinger Foal, photo by Behringer, Friedrich

I started riding again last week. Today was my second lesson with the RDA at the Drum Estate out of town, where I used to ride when I was a youngster. Starting again after a break of over thirty years, I feel a curious mix of familiarity and strangeness: Strange to feel as I felt back then, a mix of yearning, excitement and trepidation; odd to feel nostalgic about the familiar scents and sights, and to realise how much time has passed.  It is reassuring to know that I am now a grown-up and can meet and greet as I choose, with the freedom to be myself.

Posture is the big thing. I enjoy the discipline, and feel shaken to my core by the pain in my thighs, reminiscent of earlier, uglier agonies. All my nerves jump around as they try to discover a different and straighter equilibrium. I am assured that this will get easier and improve. Now, without the teenage angst and uncertainty pulling me back, I can listen more trustingly, and believe what I am told about how to sit, how to move, and about breathing deeply. If I breathe calmly, my mount will pick up on that, and we can be relaxed together.

I love to be back, and I welcome the new friendship, where I discover, yet again, that I have so much in common with others. They too have frailties and physical issues that they ignore, work with and endeavour to get past. I am not alone in that, or in anything else. The realisation that I am in such excellent company makes me at once tearfully grateful to be reminded, and sorry that I wasted so much time in isolated regret. Thank God, I am waking up. At last, I am getting over myself.

Now – sit up straight. I don’t want to waste this chance I have been given.

 

Two wild horses, equus ferus

 

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September 11, 2014

Visit to the Doctor

, , , , , , , , , , cerebral palsy, Fran's School of Hard Knocks 10 Comments

Visit to the doctor.

Rarely, if ever, do I visit my doctor’s surgery on my own account. I have found an accommodation with myself that works well, most of the time, and I know that as I get older I am finally learning to listen quietly, to suspend judgement and to live in the moment more fully. Problem is, I had a vivid dream, the meaning of which was clear, to me, at least. I have always had lots of car dreams: a car, in various states of repair, indicates my physical life and concerns. Small careering fast downhill with no steering wheel….that sort of thing.

So, a shiny, green car in good condition. Green = health, and there is lots of that. But open the passenger door, and under all green health, you can see that the hinge, the lynch pin, is rusted right away, and that the door is only just hanging on. I took this as a warning, that one of my joints needs attention, and made an appointment to ask for a referral to X ray. But my darling GP, whom I have not seen for six years, is unwilling to expose me to any more X rays than is absolutely essential – and I would agree with her, normally – so she gently declined my request, tested my joints and told me there was no sign of any damage that would either show up on an X ray, or affect my range of movement significantly.

She said she would request a referral to physiotherapy and OT, for an assessment, to see if they can make any recommendations. The problem is, as anyone who has read ‘Trapped: My Life With Cerebral Palsy’ will know, I have an insane and quite unreasonable detestation of ‘assessments’ by medical professionals. The very idea is upsetting and I fear that if I go I shall be defensive and upset and probably burst out crying. I need my privacy. Surprisingly, the fact that I have CP appears no-where on my GP notes, but has been documented elsewhere extensively, so while my GP is entirely oblivious of my emotional fragility on the matter, I cannot explain. In this particular instance, I would have preferred a referral. I could hardly sit there and say, “Well, my angels sent me a dream, which means….” So, I am no further forward, except, perhaps, that now I am certain that I should probably go swimming every single day for the rest of my life.

Conclusion 1: Wild Horses will not drag me to any assessment.

Conclusion 2 – I am more or less back to square 1.

Conclusion 3 – I shall need to start taking more care of myself.

Conclusion 4 – So, no change there, then.

I have been swimming this morning and yesterday, so we are making progress. Maybe that is what Spirit were trying to tell me – get moving, girl! Look after yourself. So I shall be cheerful and hope for a miracle. In the meantime, does anyone have any other suggestions?

 

in a town near Jenin
in a town near Jenin

 

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August 13, 2014

What I learned about abject humiliation

, , , , , , , , Fran Macilvey, Fran's School of Hard Knocks 6 Comments

What I learned about abject humiliation.

Sunday was a wash-out, and Monday was little better. Few sunny rays pieced the grey clouds, and I was resigned to feeling low and thinking that I had best learn to grow old gracefully, as Autumn was clearly on the way, and there was nothing much I could do about it. Hoh hum! I felt about as grey and depressed as the dark clouds on a cold, gloomy afternoon.

Then two things happened in quick succession. First, it occurred to me that most of the feelings of humiliation with which I was beating myself up, most of the embarrassment I was experiencing about clambering up dirty stairs and asking for help to get down again, about collapsing on the pavement in the rain, falling in puddles and achingly finding a way to clamber upright….most of the embarrassment I felt about that was invented.

Of course, I get sore and bruised, and my trousers get torn and dirtied and I have to go home and change because the mud is just too heavy and wet to carry around. Of course, other people don’t have this constant, grating uncertainty, nor the obsession with staying upright and tidy, nor the worry of falling and not being able to get up again. My left hip has no power in it.

But – but – but – but – BUT STOP. None of what I believe or think they think is real. None of the feelings I have needs to be excused or explained, and, most importantly, no-one is judging me harshly, criticising me, or expressing an unhealthy interest. No-one has negative opinions about me. No-one is critical. As I said in a comment to a comment

I realise that a great many of my unhappy feelings are the result of seeing judgements – and prejudicial judgements, at that, how prejudiced of me! – which are simply not there.

I am glad that I still have feelings, and that I am not ashamed to cry, and that I leap in the air when I am happy. For saying things like, “Now, that’s enough, dear….” I scolded my husband. If I want to feel overwhelming joy, I shall feel it. If I need to feel genuine, heart wrenching sorrow, I shall do so. And no fears of what another thinks or says will stop me. Thank God I got that sorted.

Later that evening, I found this post on my WordPress feed, which turned out to be the second thing. If anyone would like to find a great video to watch, here is one with Louise Hay and many of my other heroes, which got me back on track. Thank you, Ivy Mosquito, for finding this, and posting it when you did.

https://ivymosquito.wordpress.com/2014/08/11/this-is-my-answer/

 

 

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August 11, 2014

Abject humiliation

, , , , , , , , cerebral palsy, Fran Macilvey, Fran's School of Hard Knocks 6 Comments

Easy, get down off the boat’s slippery gangplank, only have to raise my right foot a bit higher and be careful in the rain. There we are, now, ready to start the climb up the stone steps to the island. Done this sort of thing a million times before, but usually alone, so that I can get the angle right, the exact tip needed. If I don’t quite make it first time with the foot-lift, I can have another go, while others behind me surge amicably past making friendly, reassuring noises.

Not this time. Thinking to be polite, and needing a bit of help with balance, I solicit the help of the friendly bloke clad in the regulation fluorescent jacket, on hand to offer assistance. Believing it needful, he pulls me forward, as if I am like a child and he can hoist me up. Except that, at this new angle, lifting right foot high enough to reach the step becomes impossible. I fall before I get started, and am heaved upright by two or three very willing persons. For me, an ageing, gentrified lady of fifty, the whole experience is exasperatingly familiar.

I hope you didn’t hurt yourself when you fell? Thank you, I am fine, and don’t feel in the least put out that I was effectively pulled off my feet and then raised up like a heavy lump. Being a heavy lump is scarcely a consolation, and if I let it, it could become the latest abject humiliation. Instead, I let the whole thing slide off me and disappear. Result! I have another blog post in the bag.

Except, – Oh God!- there are no handrails on either of the stairways up to the old and dignified room that remains intact amidst the general, geriatric ruination of this castle. So I stumble up and around the spiral staircase doing the landlubbers equivalent of the doggy paddle. Then all of a sudden, as if he knew exactly what I would like the most, a lovely young man appears at my side and offers, “Here, you can lean on me” and we proceed together, happily upright, me moved more than I care to admit. In the general mishmash of emotions bubbling away, it would take only a little something to start me crying. Oh, God, that is lovely music, where is my hankie? There are times when I just want someone to lean on.

Going down is the familiar story in reverse and even less dignified, filled with eddies of fear and uncertainty, while I work out what to do with my elbow crutch – it is dangerous, inflexible and in the way, so eventually I throw it down the stairs ahead of me, just to be rid of it – and then the rest is easier.

Is this yours? asks another helpful lady.

Yes, it is mine. Would you like it?

Brodowski - Portrait of a woman
Brodowski – Portrait of a woman

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