August 2019

August 29, 2019

Cooking in fantasy land

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Cooking in Fantasy Land

I can’t be the only jobbing cook who finds these weekday early evening cookery programmes increasingly irksome, surely? I have nothing against Fanny Craddock, Delia Smith, Nigella Lawson, Mary Berry and Nadiya Hussein. I admire them hugely. But I find the “it’s what sells” soft focus of early evening cooking as entertainment, and featuring a solitary female anchor, increasingly questionable. Cooking in fantasy land?

Two of the reasons I find the preparation and cooking of food so tiresome is that it takes up a lot of my time and, crucially, I do most of it alone. Traditionally preparing meals was a communal activity, and thus a chance to exchange news and have a laugh, all of which made enjoyment of a necessity. Now, that communal feature is, I feel, channelled by television production companies into “party/treat/summer/festive afterglow” themes, assisted with great mounds of whipped cream and slow mo scatterings of icing sugar so beloved of TV camera angles.

Almost all the boring stuff – the washing, rinsing, chopping and dicing is carried out by someone off-camera or conveniently fast-tracked using time-lapse photography. The fact so ably obscured behind a hundred colourful camera shots is that in the home, in our culture, cooking is not perceived as a sociable activity. Nadiya may be well paid for her talents, but, presumably because it’s what sells, she is almost falling over herself to make it look interesting, fun, exciting, sexy even – using lashings of cream, honey, nuts and fruit.

Despite cooking being a solitary activity, tv chefs are always portrayed as having so many happy, glowing handsome friends who are all so appreciative. By cooking, the fantasy invites us to believe, a chef keeps aloft the hopes and aspirations of the wider family, and all their friends, who flock to delicious parties, drawn by the irresistible aroma and upbeat effortlessness of it all. We are invited to share the fantasy, where the grass is always green and the kids are always smiling, attempting handstands on the lawn. But never helping in the kitchen?  What a con trick. Why are we still being sold this staple as a family ideal?

(to be continued)

Thanks for listening.

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August 26, 2019

Personal Update

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Personal Update

So much has been happening – and not a lot of it to do with work – that I feel now is a good time to remind myself of what my priorities are.

I’ve had my PIP assessment at home, which went well. Whatever happens next, I feel that I was listened to and heard, and that the assessor was fair and kind. More than that, none of us can expect. And, as it turns out, she was quite able to accept that problems can be difficult to understand, let alone talk about. It’s not as if I’m the first person who has ever been assessed, and I won’t be the last. At some time or other, anyone in receipt of state-sponsored assistance has to be assessed, so I took the opportunity to explain, later marvelling that I have so rarely had that opportunity: from the procedures that were sanctioned on me and over my head when I was young, to the orthopaedic consultant who suggested I try wearing high heeled shoes, it has felt as if I have been “done unto” for ever. Nice to be heard, for a change. I await the decision.

I spent eighteen hours last week, sorting out my passwords, internet accounts and Paypal, as I was hacked by a single spam link which I clicked on… I should have known better, but I’ve been lucky, with no major hassles or dramas, except the idea, at one point, that my internet business account had been deleted. It hadn’t, it was merely locked, but it gave me a few restless hours. Please be vigilant with passwords, logging in and out of accounts, and with keeping stuff up to date. And please, if in doubt, delete spam emails and report them.

I fell again last week, narrowly averting a mangle that could have been noisy, difficult and messy, and accomplished with surprising elegance and luck when I landed and sat back hard on my left wrist. But it was a stupid fall nevertheless, which hurts and is sending out aches and pains all over my left side, my shoulder and neck. Impact falls of this type start with a small site that, as it heals, radiates pain. And of course, a good swim would help, but I’m cagey, having so recently fallen…

I’m still writing, currently hoping to finish a working draft of Pip by October. If my characters keep talking to me, I hope that will work out.

Thanks for listening. 

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August 23, 2019

Ableism and me

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Ableism and me

Thanks to Emma Crees, Writer in a Wheelchair for giving me, over the years, occasion to think about ableism and me.

And in all honesty, I haven’t, much, except in relation to the obvious political footballs: austerity, poverty, dearth of ambition. But, in much the same way as our current social expectation is geared towards masculinity – football all weekend, failing which rugby, tennis, golf, or beach volleyball – for the women – and that contradiction, the blonde, female sports rapporteur – much able-ism goes under the radar, or is simply accepted, tolerated and excused.

But here’s the thing: Why?

In my faith community – to which, I regret, I am now a rare visitor – I have made two requests to help that have stood out in my mind. The first, to wash dishes, was very politely refused because, I was told, the kitchen would be very busy and they needed someone who could carry dishes from the washer and stack them, carry plates and so forth. The implication being that I would make more work for them instead of helping them, and therefore, it would be better if I did not get involved.

The second occasion was when I asked, “What I would have to do to qualify for an in-house shift at one of the larger Quaker centres?” The kind of shifts in which it is expected that members staying for a week to assist with the hospitality, will act in a welcoming, sharing capacity, helping visitors to feel at ease. It was suggested that, since the friend in residence would be expected to carry suitcases, perhaps it would not suit me. After I got home, I wrote to query this, and received no reply.

So, is “Health and Safety” now to be used to exclude persons who wish to participate? I fully recognise that, if I ask to “help” in areas where it is more usual for the able-bodied to do so, it is probable that someone else may need to help me to help them. So, am I therefore to be excluded from giving my ha’penny worth? That seems a trifle harsh.

It is hard – sometimes very hard – for a person with impairments to get up any enthusiasm for joining in. Not only is the able-bodied world peculiarly blind to the challenges faced by those with impairments – “It’s self-service, just fetch a plate and come along…” – but it can be difficult to leave the small comfort zone of passivity that those of us with impairments have marked out for ourselves. A comfort zone which, if I am typical, is made up of equal parts of consolation and despair: Not very life enhancing.

So, joining in, and feeling encouraged to join in, will be exceptionally life-enhancing to one whose usual world is four walls of a room, the bleak car-park or the limitations of a predictable, supermarket shop. Given the sheer appreciation and delight we feel when being encouraged to participate, do organisations that encourage volunteering not see the value in a buddying system that encourages that? Or is that hope of extra care deluded and unhelpful?

It does seem to me that “inclusion” must embrace all sorts and abilities, even if that means making an extra effort for that to be possible. If we are to have an accurate reflection of what “society” means we must encourage those of us who are reluctant to leave their living-rooms to get outside and live a little.

Thanks for listening.

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August 19, 2019

I am over fifty

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I am over fifty so… it’s all but over for me, is it?

Everywhere I look, in my daily newspaper, in magazines, leaflets and booklets that tumble through my letterbox, on bus adverts and these annoyingly persistent on-line ads that announce, “Over fifties’ health plan / life insurance / home equity release scheme/ travel insurance / no medicals/ Tenfor Ladies Always Discreet pads for the active “mature” lady”… I am reminded that I had better think of slowing down. I am over fifty so…?

Honest to God, perhaps I should just give up and accept that I’m old. But I don’t feel old, and in more ways than I can enumerate I feel younger, more able, more positive and more alive than I did when my age was thirty-something. I’m not just saying that, either. I have a much better grasp of what my life is for, what I can do to feel more excited, more interested and more alive. And, I would like to be allowed to do that without being dogged by the constant, promoted assumption that because I am – ta da! – over fifty, I somehow need to slow down, take it easy, ease up a bit.

I resolutely refuse to slow down, even though, in many ways, I have slowed down. I no longer pelt along the street and slam into the pavements when I fall because I’m moving so fast. Instead, I saunter, and trip and fall in a more graceful pile but, I don’t seem to notice, even with my reduced speed and my care with each step, that I am much slower than I was before.

And what is this obsession with speed, anyway? I notice it at the leisure centre, where people in the fast lane of the pool seem to swim with an almost permanent grimace on their faces. If I was watching them, I would say they hate swimming and want to get it over with as soon as possible. Do I feel like that, always counting lengths and desperate to get to twenty so I can get out and leave? Actually, yes, I had to admit, I do, often. Which is stupid.

Being aware of something we dislike is the first step to stopping it. I dislike this notion that the over fifties are on the verge of obsolescence, decayed, faded and tired. What about kind and patient? What about character-filled and interesting? Are all such qualities to be brushed aside because we walk with a stagger or a stoop, and because we insist on writing, “The man with whom I was talking” instead of “The man that I was talking to”?  

Thanks for listening.

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August 14, 2019

I got the date for my PIP assessment

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I got the date for my PIP assessment.

I got the date for my PIP assessment, today Wednesday the 14th of August.

If this had kicked off last year, I would have said, “That’s my Summer holiday thoroughly ruined”, but there is some stubborn-ness in me that refuses to give anyone that satisfaction. Just because I have to do this now, when we are supposed to be outside and tanning ourselves, having barbeques and swimming in the lake, does not mean I will descend into a worry fest. Why should I? I plan to have a great life, and that includes now, because what else matters, really, in the final analysis?

There is a great deal said these days about those who feel hard done by. And yes, for swathes of our poor, vulnerable and lonely citizens the system is really not working very well, it is stretched to breaking, and broken, in many places, badly patched. For many, many people the daily grind goes no-where near addressing their basic needs; and, since destitution is not something I shall have to face any time soon, I’m grateful, and intend to make the most of all my chances, today, tomorrow and every day.

But… – why is there always a but? – the rules in this particular system appear to be arbitrary, made up with no end in view except to further curtail the ability of those with mixed abilities, to participate. There is no real logic behind the “twenty metre rule” or the broad definition of “to mobilize”. I am informed by ATOS that someone is coming to my apartment today to see “how my disability affects me” – but really, that’s not it. They are coming to see how far I fall within parameters that they work to, and whether they think I am justified in getting additional help with my needs: all surprisingly subjective.

And that is particularly hard to explain when I find it hard to understand, when I am prone to saying, “I’m fine thanks!” even when I’m in a lot of pain and covered in mud; and when it pains me – with an almost physical ache – to enumerate the ways in which I find it difficult to do what I want to do. The gap between what I aspire to, and what I can reasonably manage is increasingly obvious, and makes me, on my bad days, want to – to end – this crux of compromising.

None of which is self pity. But there are shards of despair in there that I dare not look at too closely.

Thanks for reading.

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August 11, 2019

Points of departure

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Points of departure

Following my previous post, I have also cause to reflect, again, that a memoir cannot cover every aspect of a life. Not only would our attempt to cover “everything” make of a memoir an encyclopaedia, but naturally, the scrutiny of a memoir covers certain periods, and stops at certain natural points. Beyond these points of departure, our lives can change, and flourish beyond recognition.

In my memoir, for example, I reflect on every young girl’s dreams of being included, being loved, part of a carefree community of those who enjoy life. I talk about certain on-going traumas that affect people with my abilities – the assumptions, for example, that we will do what we are asked, that we should never be a nuisance, that we should be inconspicuous and no trouble, and, above all, never embarrass anyone. (Can others embarrass us? Well, yes, that is fairly routine.)

“Trapped” also explores some myths of mainstreaming that we all face at some points in our lives. If only you will be good, if only you will work hard and make us proud of you, the myth whispers, you too, can have all that we have: friends, family, a wonderful job, meaningful occupation, a fantastic, fulfillingly amazing emotional life… And, as anyone will tell you, it ain’t necessarily so. We all fall down, at times. We fail exams, we break up relationships, we may even become homeless or destitute. But the common thread in all these low points is that – in more ways than we are usually aware – we are the same. We all have stories to tell, and lessons to learn. And in that, we are, and can always be, bigger than the sum of our parts.

Thanks for listening.

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August 8, 2019

Memoir writers and privacy

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Memoir writers and privacy

Here’s a new idea that I saw voiced on a FB thread recently. That it is rich – and I paraphrase – for a memoir writer to complain about breaches of privacy.

The imposition on online users of various extra security rules and requirements, for example, being asked to supply our phone number for extra security, or told we “must” download our banking app onto our mobile phone, seems to be becoming more widespread. These extra security measures sound harmless enough: if we are in France our holiday, say, and we attempt to log in to Facebook, there are times when we will be blocked from doing so. I assume that the mega computers are suspicious that we are not ourselves, and we are therefore asked to supply extra data for verification before we can access our accounts. (At least I now know what “Please add your phone number for extra security” is all about. I have not and will not give out my phone number. And so, I won’t use on-line networks when away from my usual domicile.)

However, I started this blog post to probe one suggestion made, that it is rich – and I paraphrase – for a memoir writer to complain about breaches of privacy.

Huh?? Memoir writers are people with lives that go well beyond the content of a memoir or even a confessional, weekly newspaper column. And if we write sensitively, no-one else we mention in our memoirs – and other people usually feature tangentially – should not come off too badly. I change names, alter circumstances, and in any case, my recall is often at variance with that of others, which acts as a natural, protective barrier around our personal lives. “What? I don’t remember that!!” is not simply about perspectives: it places our recall at a remove which ultimately, is like a safety valve.

I think, I suppose, probably, that the assumption made, that memoir writers have no expectation of privacy, has two parts. First, that memoir writers have already laid their lives out for public scrutiny, and therefore, they are used to it, expect it, and have somehow forfeited their rights to privacy. Second, that they – I am supposing – have already made reference to the lives of others in, I am supposing, a rather presumptuous fashion and therefore, have a bit of a cheek supposing that they should be entitled to privacy when those they write about have been “outed”.

Both these assumptions are questionable at best. Memoirs are often an attempt by writers to make sense of chaotic or baffling circumstances. They are an attempt to join with others in understanding, to reach out and console, and to get beyond first base and live better lives. That all seems very useful and worthwhile to me, and doesn’t lend me to suppose that memoir writers have skin like rhinos or are uniquely tough and open-all-hours type of people.

Thanks for listening.

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August 2, 2019

Passing the buck

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Passing the buck

I was speaking recently to a friend, whose wife has a long-term, incurable condition, and whose original lifetime award for DLA has recently been reassessed. The outcome of her claim is that she has received a two-year award for PIP. Which means, she keeps her car meantime, and can keep working, as long as she is able. It also means that in two years, she will have to re-apply, and start jumping through a fresh set of hoops.

In two years’ time, we are supposing that a package of existing welfare benefits, including PIP, will have been devolved to the Scottish government. So, by handing out short-term awards, is Westminster simply passing the buck? All the existing, temporary awards that have recently been made are going to require reassessment – unless they are also lifetime awards – when they expire; and one result of awarding PIP even for a short time, is that no “parachute payment” (awarded when a claimant who qualified for a vehicle under the old DLA scheme loses their entitlement under PIP) is paid.

If the outcome of my reasssessment is that I lose my car, then at least I have one major comfort: When benefits are devolved, I can reapply to the Scottish Government and see what happens. Whatever their decision may be, I’d rather have decisions about my benefits entitlements taken by an independent expert – not ATOS or AWOL please – and emanating from a political administration with which I have some sympathy. Sorry to say, but I’ve never voted conservative, and I don’t think I ever will: I am just too aware of the undeclared value of “social capital” – “good” education, “privileged” up-bringing etc – to suppose that it has no effect on our democratic processes. Although, if current political developments are anything to go by, there is evidently no guarantee that even with social capital, we obtain sound governance.

I’ll keep you updated on the progress of my PIP application.

Meantime, thanks so much for listening.

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